Sunday, July 7, 2013

First Cardiology Appointment- 4/30/2013

Email sent to friends and family on 4/30/2013:


Today was Evin’s appointment with the cardiologist from Cook Children’s.  She had an echocardiogram (ultrasound of the heart) and an EKG (electrical activity of the heart) done.  She was so good during the appointment, which took about 2 hours, and she only cried with they pulled the sticky leads off her chest.  I would have cried too!

Waiting to have the EKG done.


She got a good report from the doctor and they are happy with how her body is responding to the shunt.  Her oxygen saturation was in the high 90s and at one point was 100.  This would be great for normal babies, but for babies with a shunt, they would rather this number be in the mid to high 80s.  She is doing a little too good and they don’t want her to get overcirculated. 

The shunt allows blood to flow both forward and backwards into her lungs, which means that right now she has a lot of blood flowing through them.  This means that her heart has to pump all this blood through and it could be tiring her out.  As a precaution, the doctor decided to put her on a once a day dose of Lasix, a diuretic that will cause some of this extra fluid to be excreted out of her body so her heart won’t have to work quite so hard.  While I didn’t want Evin to have to be put on any more medication, I am extremely happy that her little body won’t have to be working so hard.

I asked the doctor for a recommendation of a good pulse oximeter that Mitch and I could purchase to periodically check Evin’s oxygen saturation while we are at home.  It would just give us peace of mind to be able to check it when we want to.  The doctor said that she would put in a call to Cook’s Home Health and that they would bring a pulse oximeter to our house that we could borrow!  I am so glad I asked!  They will be coming to our house tomorrow to get it set up.

I asked if they had a time frame in mind for the second surgery and she said they  usually have it around 4 months old.  She said it depends on Evin’s growth as to whether it will be earlier or later than that.  This is what we were told before, but I thought I would try to get a more definite answer out of her today.  No such luck!

Evin has been a happy girl lately is and dishing out lots of smiles!  She loves to lay on the floor and stretch her legs while checking out the scenery.  In one of the pictures I attached you can see her favorite sleeping position.  She throws her head back which looks so uncomfortable, but when I reposition her she goes right back to laying this way!  Silly girl!

We go to the pediatrician this Friday for a weight check and then again on the 17th for her 2 month check up and shots.  She will visit the cardiologist again on 21st for another echo and EKG and will have this done every month. 

Thank you all for the prayers!
Kori

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